How many of us have heard this? You can't have trouble with food... You don't look it. You can't be in chronic pain... You did Tough Mudder. You can't just dislocate your joints... that would be sore! You can't have anxiety... you're so normal. We've heard people say this before. It's hard to hear, even … Continue reading You can’t be ill if you can…
Category: Personal
Ehlers Danlos Syndrome
For quite a while now - but more since my recent diagnosis with my jaw I have heard the name Ehlers-Danlos Syndrome (Joint Hypermobility Syndrome) being thrown in my general direction. Specifically the Hypermobility type. From what I have read I am able to more or less tick all the boxes especially the joint related … Continue reading Ehlers Danlos Syndrome
MRI – The Results
So the results are in... In short, my face is broke. Both my TMJ discs are dislocated -my left more than the right. The condyle ( the sticky up part of the "hinge") on the left of my face is also deteriorated. I also have subluxation which is causing my bite to constantly be changeable. … Continue reading MRI – The Results
My Jaw MRI Experience.
I have TMJ issues at the moment and I was sent for a MRI. This was my experience.
Chrimble!
I hope you all had a great festive time 🙂 Mine was full of love and cuddles and lots of pyjamas. How was yours? I had got James a special Blue Ray - Transformers movie (from the 80s) - the anniversary edition with a funky tin and never before seen footage. Plus it's remastered in … Continue reading Chrimble!
Let it Snow
I adore snow. Do you? We've been getting ready for Christmas. It's been tough as I'm having a lot of pain at the moment. My MRI is next week on the 23rd for my jaw. My maxillofacial surgeon reckons I have displaced my disc on my TMJ (temporomandibular joint). But we will see next week. … Continue reading Let it Snow
The Last Week.
10 days - I'm sorry. I've been rather meh. Between taking strong pain meds and muscle relaxants, not sleeping because of night fevers and pain and still having a 90% liquid diet, I'm exhausted. Some days I have slept and barely been able to have the energy to eat and others I have used my … Continue reading The Last Week.
Well. Hurumph.
Firstly, the maxillofacial surgical consultant was really nice. I feel comfortable in trusting him to, with any luck, unlock my jaw. The plan: MRI in the next week. Appointment next week to discuss a plan of action. Fix face. Hopefully, that is how it will work and I will be able to eat Christmas dinner.Hopefully. After … Continue reading Well. Hurumph.
The Sun Will Come Out, Tomorrow.
Tomorrow, I have an appointment with the oral surgeon in the dental hospital in the city. At the appointment on Friday, my dentist decided that their definition of "urgent" and his were not the same as my jaw is more locked than before and my "good" side is starting to lose muscle strength. Looking forward … Continue reading The Sun Will Come Out, Tomorrow.
It’s a Delicate Balance.
As you may have noticed I have been quite for a couple of days. The kitchen has been the reason - it needed to be organised. Last week James put up shelves in the kitchen that looks awesome. Yesterday I powered on through and got the kitchen back to a level of organised cleanliness that … Continue reading It’s a Delicate Balance.