Over the last week or so, since the first death of a UK citizen due to the COVID-19 outbreak in the UK, news anchors have announced each death with: "They were a man/ woman of -- years old however they were known to have pre-existing conditions." For the majority of the population, this is a … Continue reading They Had Pre-Existing Conditions
Tag: ehlers danlos syndrome
Testing… Testing… Hello? Is this on?
Hello! Um... Yeah. Long time no see? Type? Hi. I've been away. December sucked. I was in the hospital for almost all of it, and I got out on Christmas Eve. Since then I have been recovering physically and mentally as well as throwing what energy I can into my little eBay shop! However, I … Continue reading Testing… Testing… Hello? Is this on?
Blogmas 2018 – Day 1
I've been seeing lots of folks on YouTube doing "vlogmas" so I thought I would try my version. So here it is Blogmas. So, on the 1st of December. Sleepy. I think that is an excellent way to describe it. The big cats had their vet check-ups, so we were up and out by 0930. … Continue reading Blogmas 2018 – Day 1
MY EXPERIENCE OF NHS POSTERIOR LUMBAR DECOMPRESSION AND INTERBODY FUSION – POST OP DAY 1
After the last post, I was somewhat mentally exhausted - so sorry that this wasn't up yesterday as planned. But, here it is. The next little instalment of the saga of my spinal fusion. We left off when I was taken back to the ward after recovery. It was around eight o'clock in the evening so … Continue reading MY EXPERIENCE OF NHS POSTERIOR LUMBAR DECOMPRESSION AND INTERBODY FUSION – POST OP DAY 1
NHS Surgery Pre-Op Assessment – My Experience
Yesterday I had my pre-op assessment for spinal decompression and stabilisation surgery. I kept a little diary of the whole experience as I thought it might prove useful to someone else about to embark on the same journey. 6:15 AM - I'm awake! I'm not half asleep perched on the side of a bathtub, evaluating the … Continue reading NHS Surgery Pre-Op Assessment – My Experience
Oh Dear… I am Sorry 🖤
I have just realised my last post was in July. I have no real reason - I just haven’t. A little update. My jaw is much better - talking and eating isn’t anywhere near as difficult or painful as it was pre-op. I’m still going to physio to amp up my strength for my spinal … Continue reading Oh Dear… I am Sorry 🖤
My (2.5) Week on Instagram
The last 2 and half weeks have been a little crazy. Follow me on Instagram <- clicky. Photo 1: Ah - these. Yeah. This is the paper pants they make you wear during surgery. I had surgery on my jaw... so I have no idea why I required paper underwear. 🤔 Photo 2: A very tired, … Continue reading My (2.5) Week on Instagram
TMJD Surgery – Day 5
There isn't really much to report at this point. I'm very, very sleepy. I slept a lot yesterday. Which is why there is a lack of anything exciting. I spent all day either watching Food Wars (Shokugeki no Soma) or sleeping. Such a rock n roll lifestyle. James the wonderful has been amazing - he … Continue reading TMJD Surgery – Day 5
TMJ Surgery – Day 3
Morning folks! So Day three was tough. Lots of pain, lots of frustration and generally feeling a bit low. I mean I'm 48 hours post op so it's expected. I'm just not good at the whole resting thing. Around 12 my dad came and picked me up and I had my first outing. I needed … Continue reading TMJ Surgery – Day 3
TMJD Surgery – Day 1
This won't be the best-written blog post in the world. Nor the most eloquent as you can imagine. I think I am writing this mini journal as a way to help other people with TMJD surgery - including those with Ehlers-Danlos Syndrome. A quick flashback. In October I woke up and yawned and my jaw … Continue reading TMJD Surgery – Day 1