After the last post, I was somewhat mentally exhausted - so sorry that this wasn't up yesterday as planned. But, here it is. The next little instalment of the saga of my spinal fusion. We left off when I was taken back to the ward after recovery. It was around eight o'clock in the evening so … Continue reading MY EXPERIENCE OF NHS POSTERIOR LUMBAR DECOMPRESSION AND INTERBODY FUSION – POST OP DAY 1
Yesterday I had my pre-op assessment for spinal decompression and stabilisation surgery. I kept a little diary of the whole experience as I thought it might prove useful to someone else about to embark on the same journey. 6:15 AM - I'm awake! I'm not half asleep perched on the side of a bathtub, evaluating the … Continue reading NHS Surgery Pre-Op Assessment – My Experience
I have just realised my last post was in July. I have no real reason - I just haven’t. A little update. My jaw is much better - talking and eating isn’t anywhere near as difficult or painful as it was pre-op. I’m still going to physio to amp up my strength for my spinal … Continue reading Oh Dear… I am Sorry 🖤
The last 2 and half weeks have been a little crazy. Follow me on Instagram <- clicky. Photo 1: Ah - these. Yeah. This is the paper pants they make you wear during surgery. I had surgery on my jaw... so I have no idea why I required paper underwear. 🤔 Photo 2: A very tired, … Continue reading My (2.5) Week on Instagram
I called NHS 24. My surgical site is unhappy. It's sore and warm and my head stings. They told me to go to the out of hours doctor. So I'm here, in the waiting room. The mix of ailments and people makes no sense to me. There's the guy clutching his stomach and groaning but … Continue reading Waiting Room
There isn't really much to report at this point. I'm very, very sleepy. I slept a lot yesterday. Which is why there is a lack of anything exciting. I spent all day either watching Food Wars (Shokugeki no Soma) or sleeping. Such a rock n roll lifestyle. James the wonderful has been amazing - he … Continue reading TMJD Surgery – Day 5
Morning folks! So Day three was tough. Lots of pain, lots of frustration and generally feeling a bit low. I mean I'm 48 hours post op so it's expected. I'm just not good at the whole resting thing. Around 12 my dad came and picked me up and I had my first outing. I needed … Continue reading TMJ Surgery – Day 3
Today I am a little more put together in the brain department - still contending with post-op fog though. Where did I leave you? Ah yes - trying to sleep. That didn't happen. I couldn't rest at all as I had hourly observations as my blood pressure was very low and they wanted to check … Continue reading TMJD Surgery – Day 2
This won't be the best-written blog post in the world. Nor the most eloquent as you can imagine. I think I am writing this mini journal as a way to help other people with TMJD surgery - including those with Ehlers-Danlos Syndrome. A quick flashback. In October I woke up and yawned and my jaw … Continue reading TMJD Surgery – Day 1
For quite a while now - but more since my recent diagnosis with my jaw I have heard the name Ehlers-Danlos Syndrome (Joint Hypermobility Syndrome) being thrown in my general direction. Specifically the Hypermobility type. From what I have read I am able to more or less tick all the boxes especially the joint related … Continue reading Ehlers Danlos Syndrome
