But we've been busy with doing up the house and medical appointments. It's getting there. The house. The medical side is too. I have a lovely walk in wardrobe now with lots of storage, we both have our individual desks in the study. James with his awesome handmade guitar rack and me with a place … Continue reading It’s Been a Long Time…
Category: Medical
So Tired
Today is a bad day. I've had to relocate my ankle and shoulder quite a few times. Only the right ones. My right hip is refusing to relocate. No matter how I contort or the quantity of physiotherapy I do. It remains just out of the socket. I've been sick quite a few times. I … Continue reading So Tired
You can’t be ill if you can…
How many of us have heard this? You can't have trouble with food... You don't look it. You can't be in chronic pain... You did Tough Mudder. You can't just dislocate your joints... that would be sore! You can't have anxiety... you're so normal. We've heard people say this before. It's hard to hear, even … Continue reading You can’t be ill if you can…
Ehlers Danlos Syndrome
For quite a while now - but more since my recent diagnosis with my jaw I have heard the name Ehlers-Danlos Syndrome (Joint Hypermobility Syndrome) being thrown in my general direction. Specifically the Hypermobility type. From what I have read I am able to more or less tick all the boxes especially the joint related … Continue reading Ehlers Danlos Syndrome
MRI – The Results
So the results are in... In short, my face is broke. Both my TMJ discs are dislocated -my left more than the right. The condyle ( the sticky up part of the "hinge") on the left of my face is also deteriorated. I also have subluxation which is causing my bite to constantly be changeable. … Continue reading MRI – The Results
My Jaw MRI Experience.
I have TMJ issues at the moment and I was sent for a MRI. This was my experience.
Let it Snow
I adore snow. Do you? We've been getting ready for Christmas. It's been tough as I'm having a lot of pain at the moment. My MRI is next week on the 23rd for my jaw. My maxillofacial surgeon reckons I have displaced my disc on my TMJ (temporomandibular joint). But we will see next week. … Continue reading Let it Snow
The Last Week.
10 days - I'm sorry. I've been rather meh. Between taking strong pain meds and muscle relaxants, not sleeping because of night fevers and pain and still having a 90% liquid diet, I'm exhausted. Some days I have slept and barely been able to have the energy to eat and others I have used my … Continue reading The Last Week.
Well. Hurumph.
Firstly, the maxillofacial surgical consultant was really nice. I feel comfortable in trusting him to, with any luck, unlock my jaw. The plan: MRI in the next week. Appointment next week to discuss a plan of action. Fix face. Hopefully, that is how it will work and I will be able to eat Christmas dinner.Hopefully. After … Continue reading Well. Hurumph.
Turning a new Leaf
Over the past two days, I have met my new GP and my new nurse. If you have read my last post you will know that I had to meet my new GP to discuss my medication including my need for a new prescription of Tramadol - which she allowed. My spine and I thank her. … Continue reading Turning a new Leaf